Yesterday we saw Dr. Burt for one year follow up of HSCT. Drum Roll please! I am still in remission! No new activity, which means no new lesions or active lesions 🙂 Unlike my 6 month follow up, where my lesions shrunken, this time there are no changes, just as I was. This is my first year after a decade, more then a decade where I had no active lesions, or any new lesions. This is amazing and I am the luckiest!!!
We been holding onto updates for whole summer, one reason or another, but it is September!
So lets start autumn with talking about how things are and also do some heavy and may be a bit non-traditional thoughts about HSCT as a cure for MS.
We will be in Chicago October 25-28 (most of the day on 28th), we would love to see everyone who is going to be there, also please see link if you would like to participate in this Faces of Auto-Immune Diseases .
If you see my post for the first time and would like to see my journey from the beginning, you can find it here Journey to there and back.
We are going to be in Chicago on Monday the 21st of this month until Wednesday for 5 months follow up with Dr. Burt. A month ago new symptoms started to come out, feels like a relapse, but who knows! So, got a call from Dr. Burt and he asked me to come in. So here I come! While we are there would love to meet anyone and everyone who is there in Chicago. Please, see the video and leave a comment if you are available or would like us to come by.
So, post HSCT Day +29. Feeling…good and bad?
I see improvements once I get past the unpleasant symptoms.
Positives: walking better, peripheral vision in the right eye is coming back. I would say that is remarkable: beating MS.
Unpleasant symptoms: dizziness, shortness of breath, chest pressure, GI problems, nausea, lethargic.
I would say the positives out way the unpleasant symptoms.
More of everything in the video.
Love Always and forever grateful to Dr. Richard Burt and the whole team of Northwestern,
I am day +25 post HSCT.
Out bodies are truly amazing. The recovering has been a roller coaster, just like everyone says 🙂
I been feeling same side effects since I came back, except it has been explained today. Side effects are nausea, diarrhea, other GI problems, hard to catch my breath, chest pressure, extreme fatigue (I am out of breath going from the kitchen to the living room, dizzy and exhausted), I also got conjunctivitis (even though the infection cleared up, my eyes still hurt and feel heavy), headaches (feel like someone drove a nail to my head), I will stop here…I am sure I can think of more. Anyways! I got a call before 8 am today from PA, Kaitlyn Leska and they have my CMV results. Let me explain, my first CMV results were not done correctly so, at last they are here. AND! CMV that is dormant for most people, has a chance to come out due to low immune system and I got it. You know what I am relieved to know this, because I thought I was nuts, well so did Dr. Burts office. I am not crazy everything I am feeling and experiencing is due to Cytomegalovirus (CMV). This is not a big deal, if it wasn’t caught it might have been but that’s why we do blood tests when I come back. So if you are about to go through this just know, you will be ok, they take care of us. This will be taken care of by taking a different antibiotics. Kaitlyn hopes I will feel better in a week and so do I. So no worries, don’t stress, not a big deal.
Here is more info about CMV http://www.medicinenet.com/cytomegalovirus_cmv/page2.htm#what_is_cytomegalovirus_cmv
Now good news!
Speaking of noticing the difference. My incontinency is almost gone, I can’t believing I am actually saying this, never expected this… I am not soiling my pants, and I am not scared that I won’t make it to the bathroom, I can actually hold it. This is amazing news, it is such a life changing event for me! So, this alone is worth it! Thanks, to Dr. Burt and his team, exciting…very exciting.
I am looking forward to noticing more changes, I hope 🙂 So this is it, if this is the first time you watching my video, or reading this, you can see more on lanapiller.com, I hope it will be of help to any of you.
Sergei is working on his project to raise awareness of autoimmune diseases and HSCT. It is all shot with his 4×5 film camera, on black and white film. Like in old times!
Today he worked with Lisa, who was kind to donate her time to this and take part in this project. You can contact either one of us (me or Sergei) if you like to know more of the project, take part in it or would like to be part of venue to show the finished results, once project is done. We right now in Chicago, but later we will be back to Dallas, and we doing road trips sometime, so we can meet up and make things happen! Please help us to move this project forward by participating!
As we get home first batch of film will be developed and portraits and stories will start appearing on specially designed website.