Tag Archives: dr. richard burt hsct post hsct symptoms ms

3.5 years post HSCT follow up with Dr. Burt

So here you go.

Yes it can be Secondary, or it maybe an infection.

He does want me to take antibiotic for a year to clear up my chronic infection.  By the end of the year I will have a hole in my intestint, woot! Maybe but I got to do what I need to do. Within a month I will know if it is an infection causing my legs to worsen or I am progressing. We shall see. Here is our entertaining video as always.Watch me

 

3.5 years follow-up post HSCT with Dr. Burt

Hello All,

Been a while, my fault. We have two takes for the video as Sergei thought the first one wasn’t happy. So pick whichever one you want to see or both, suppose second one has more content.   These videos shot before we have seen Dr. Burt. Lots of nervous jitters, lot of unknows to this follow up.

Take One 

Take Two

I also would like to remember Karen Bryan. It is hard to believe that she is gone. Scleraderma took her life, but it didn’t win over her.  May she rest in peace.

Post HSCT Day +29


Hi All,

So, post HSCT Day +29. Feeling…good and bad?
I see improvements once I get past the unpleasant symptoms.
Positives: walking better, peripheral vision in the right eye is coming back. I would say that is remarkable: beating MS.
Unpleasant symptoms: dizziness, shortness of breath, chest pressure, GI problems, nausea, lethargic.
I would say the positives out way the unpleasant symptoms.
More of everything in the video.

Love Always and forever grateful to Dr. Richard Burt and the whole team of Northwestern,

Lana