Tag Archives: hsct ms

10 month update and speaking my truth

HSCT Journey: Present to Future, , , , , , , ,

Hi

We been holding onto updates for whole summer, one reason or another, but it is September!
So lets start autumn with talking about how things are and also do some heavy and may be a bit non-traditional thoughts about HSCT as a cure for MS.
We will be in Chicago October 25-28 (most of the day on 28th), we would love to see everyone who is going to be there, also please see link if you would like to participate in this Faces of Auto-Immune Diseases .

If you see my post for the first time and would like to see my journey from the beginning, you can find it here Journey to there and back.

Day +5

HSCT Journey: Present to Future, , , , , , , , , ,

So as we nearing end of Day+5 – we decided to shoot new video, kind of show off how I am doing and talk a bit about what is going on on Day+5, specially after whole scare with fire in hospital and platelets dropping.

Doing rounds on day +5

First of all – no worries, I am doing much better tonight than I did in morning, thank you for all the kind comments and wishes. Platelets still low but I got supporting IV medications and it helped a lot.

Taking shower is not to be discarded too. I also did few rounds around floor. But more is in the video.