So after the fun with helium from previous video and upon returning to room pain hit. Real pain. Bone pain. From waist down.
Can not walk. Shouting from spasms. Yelping. All that.
In between of yelps and shots of pain we tried to record this video.
Fair warning – it is a bit raw, with some cuss words tossed in, sorry. Filters off when pain hits that much.
About hour after video was recorded oral morphine was finally prescribed. Edge is slowly receding but pain is still pretty bad. There is some hope for sleep tonight.
On positive side theory is that if you hurting – your white cell count goes up. Fingers crossed.
So as we nearing end of Day+5 – we decided to shoot new video, kind of show off how I am doing and talk a bit about what is going on on Day+5, specially after whole scare with fire in hospital and platelets dropping.
First of all – no worries, I am doing much better tonight than I did in morning, thank you for all the kind comments and wishes. Platelets still low but I got supporting IV medications and it helped a lot.
Taking shower is not to be discarded too. I also did few rounds around floor. But more is in the video.
HSCT Transplant with Dr. Richard Burt is completed.
It still is the best, physically well that I felt to date.
The transplant it self is not very eventful. It takes 20 minutes compare to 5-8 hours for harvest the stem cells.
I talk about how it felt and what is next.
Love Always, Lana.
Stems Cell coming home!
Me during the actual transplant. Kaitlyn Leska, PA for Dr. Burt is next to me and she is talking me through it.
Finally the Harvest time at Northwesten for Clinical Study with Dr. Richard Burt.
Nuepogen shots were done, it hurt, it hurt really bad for me but it is different for me.
I will add a few more video about the harvest shortly.
Love Always, Lana
Here is a video that is a must watch.
This video was made after mobilization at Northwestern for HSCT with Dr. Richard Burt. I go into fairly deep explanation what it involved and what will come in the next few days. From chemo to other medications, what am I am expected to feel like and so on.
This is Part 1.
This video came along very naturally to us. Sergei and I hear from the patients as well as loved ones, and it is hard to maintain a strong, loving, lasting relationship while facing a scary monster(such as Multiple Sclerosis in our case) that can attack at any time. So here is our perspective on it, how we make it work, it’s honest and raw. I hope you will enjoy. Leave your comments!
Love Always, Lana
My friend and neighbor Bon, she is an amazing woman. Twice cancer survivor and she has MS, crazy ha?!
We recorded this video because after I started my fund raising and posting about my coming up journey for HSCT/Dr.Richard Burt, I started to receive messages from people who seemed…confused? Some people think it’s a flu, where others say what is the big deal?! because they know someone who has MS and they are fine.
No, no my friends, it is not fine. MS is silent killer, most people who are suffering, suffer in silence. Symptoms differ for everyone, and this post or that video could be so much longer, I can talk about it all night but I won’t. Here is what I recorded. Please, enjoy, leave your comments and feedback.