Hello everyone.
It has been now 18 months since my HSCT at the Chicago with Dr. Burt. We shot this short video from our road trip to share and talk about current happenings and just reiterate some thoughts and to answer some question too.
As always – please do not hesitate to send us your questions and comments. And even concerns, as you might have some, about HSCT and whole MS situation.
Thank you very much for watching, for talking to us and for following my journey.
Hello!
We are going to be in Chicago on Monday the 21st of this month until Wednesday for 5 months follow up with Dr. Burt. A month ago new symptoms started to come out, feels like a relapse, but who knows! So, got a call from Dr. Burt and he asked me to come in. So here I come! While we are there would love to meet anyone and everyone who is there in Chicago. Please, see the video and leave a comment if you are available or would like us to come by.
Also some additional links that we speak of in the video:
http://www.facebook.com/facesofmultiplesclerosis/ (this is for all auto-immune decease not just MS
http://www.facebook.com/events/1707002529517763/
So after the fun with helium from previous video and upon returning to room pain hit. Real pain. Bone pain. From waist down.
Can not walk. Shouting from spasms. Yelping. All that.
In between of yelps and shots of pain we tried to record this video.
Fair warning – it is a bit raw, with some cuss words tossed in, sorry. Filters off when pain hits that much.
About hour after video was recorded oral morphine was finally prescribed. Edge is slowly receding but pain is still pretty bad. There is some hope for sleep tonight.
On positive side theory is that if you hurting – your white cell count goes up. Fingers crossed.
This video came along very naturally to us. Sergei and I hear from the patients as well as loved ones, and it is hard to maintain a strong, loving, lasting relationship while facing a scary monster(such as Multiple Sclerosis in our case) that can attack at any time. So here is our perspective on it, how we make it work, it’s honest and raw. I hope you will enjoy. Leave your comments!
Love Always, Lana
My friend and neighbor Bon, she is an amazing woman. Twice cancer survivor and she has MS, crazy ha?!
We recorded this video because after I started my fund raising and posting about my coming up journey for HSCT/Dr.Richard Burt, I started to receive messages from people who seemed…confused? Some people think it’s a flu, where others say what is the big deal?! because they know someone who has MS and they are fine.
No, no my friends, it is not fine. MS is silent killer, most people who are suffering, suffer in silence. Symptoms differ for everyone, and this post or that video could be so much longer, I can talk about it all night but I won’t. Here is what I recorded. Please, enjoy, leave your comments and feedback.