We are going to be in Chicago on Monday the 21st of this month until Wednesday for 5 months follow up with Dr. Burt. A month ago new symptoms started to come out, feels like a relapse, but who knows! So, got a call from Dr. Burt and he asked me to come in. So here I come! While we are there would love to meet anyone and everyone who is there in Chicago. Please, see the video and leave a comment if you are available or would like us to come by.
This post is for the ladies, and gentleman those of you that might be effected as well by multiple sclerosis.
As many of us know the struggle is real and has effected our sex lives. Does it get better, do you get the feeling back?
For me it did, oh it is so nice to have the feeling again 😀 I hope it is the case for many.
Menopause is a nasty bitch and got to ride that wave.
Here is a short video for you all, sexpost HSCT and I would love to hear your story. Please, leave a comment!
I have been short on updates lately, sorry.
So we decided to record this video to talk about end of the year results, current and not so current events.
Fired, new job, legs and general life. All is there. And of course
So, post HSCT Day +29. Feeling…good and bad?
I see improvements once I get past the unpleasant symptoms.
Positives: walking better, peripheral vision in the right eye is coming back. I would say that is remarkable: beating MS.
Unpleasant symptoms: dizziness, shortness of breath, chest pressure, GI problems, nausea, lethargic.
I would say the positives out way the unpleasant symptoms.
More of everything in the video.
Love Always and forever grateful to Dr. Richard Burt and the whole team of Northwestern,
It is post HSCT Day +12, no more fever or excruciating pain (but still not pain-free, unfortunately).
I do have other unpleasant symptoms. Constant nausea, I do have two different medications that I am rotating but it does not seem to help. I also have diarrhea for over 24 hours, any veterans experienced diarrhea post HSCT?
I get winded very quickly, 10 minutes kind of quickly. Went to the store with my mom, 10 minutes later I was holding up one of the counters, you know just in case it was going to fall 😉
I know this will take time and I am not running any marathons right now, so I will take it easy now.
Love Always, Lana
So, here we are. Day +10. Third day of engraphment, third day of pain. Temperature jumping up/down like a rabbit, but it doesn’t look like i am sick, looks like body still going through the growing process, even though its been 72 hours since last neupogene shot.
We did video, sorry, its a bit less light hearted than previous ones, but thats what life is like right now.
But its all for the greater good, right?
If you already went through this phase after HSCT, specially with MS – please, I would love to hear your experiences too (and about pain relieve too) , because it is a bit scary, as I suddenly realized how vulnerable I am right now to anything that is out there.
My husband just came back with loads of antibacterial wipes, soaps and what not, laid it around the house.
Life goes one. Happy Halloween, folks. Happy Saturday.
So as we nearing end of Day+5 – we decided to shoot new video, kind of show off how I am doing and talk a bit about what is going on on Day+5, specially after whole scare with fire in hospital and platelets dropping.
First of all – no worries, I am doing much better tonight than I did in morning, thank you for all the kind comments and wishes. Platelets still low but I got supporting IV medications and it helped a lot.
Taking shower is not to be discarded too. I also did few rounds around floor. But more is in the video.